tag:blogger.com,1999:blog-1638179655469527844.post1941276637362395947..comments2023-10-01T06:42:37.668-07:00Comments on Songs From The Id: 1 and a half months post KWoodyhttp://www.blogger.com/profile/10941380097324635644noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-1638179655469527844.post-30953492214869141082013-04-27T10:06:34.256-07:002013-04-27T10:06:34.256-07:00Thanks, Woody.
:-)Thanks, Woody.<br />:-)Maddie's Familynoreply@blogger.comtag:blogger.com,1999:blog-1638179655469527844.post-11128086245487513912013-04-27T08:48:54.607-07:002013-04-27T08:48:54.607-07:00Hi Maddie's family, yes of course, it would be...Hi Maddie's family, yes of course, it would be an honour, if that doesn't sound too pretensious :-)Woodyhttps://www.blogger.com/profile/10941380097324635644noreply@blogger.comtag:blogger.com,1999:blog-1638179655469527844.post-54989912792465224732013-04-24T06:46:37.478-07:002013-04-24T06:46:37.478-07:00Woody
I'm speaking at the CF Trust's Scien...Woody<br />I'm speaking at the CF Trust's Scientific Conference next week and hope it's OK to quote from your blog.<br />Best wishes,<br />MFMaddie's Familynoreply@blogger.comtag:blogger.com,1999:blog-1638179655469527844.post-62876801113319032332013-04-03T15:12:34.097-07:002013-04-03T15:12:34.097-07:00The cause of much blubbing!The cause of much blubbing!Maddie's Familynoreply@blogger.comtag:blogger.com,1999:blog-1638179655469527844.post-69326242254593572632013-04-02T04:58:23.013-07:002013-04-02T04:58:23.013-07:00Wow! great results!Wow! great results!Woodyhttps://www.blogger.com/profile/10941380097324635644noreply@blogger.comtag:blogger.com,1999:blog-1638179655469527844.post-5258948924627073022013-03-26T05:04:40.765-07:002013-03-26T05:04:40.765-07:00Hi Woody,
Clinic yesterday. Weight has increased b...Hi Woody,<br />Clinic yesterday. Weight has increased by 2kg (but hard to say if this is a direct effect of K as (1) it had plateau'd and then dropped off over previous 6 months (2) we have been more careful to spread creon out over the course of each meal as she has been eating very slowly (3) higher fat diet with K will undoubtedly have some effect). FEV1 was nominally up by 6% but her technique is completely unreliable (she blew between 90 and 105% yesterday) so I am not placing much weight on that either. <br />Sweat test results have just been phoned through by the wonderful CF Nurse Specialist at the Brompton. They run 2 tests on each occasion. Baseline results in January were 97 & 107. Yesterday they were ... 22 & 23. I completely lost the power of speech when on the phone to Jackie.Maddie's Familynoreply@blogger.comtag:blogger.com,1999:blog-1638179655469527844.post-17000700864629842752013-03-21T05:12:50.146-07:002013-03-21T05:12:50.146-07:00Thanks guys hoping the upcoming trials for yous do...Thanks guys hoping the upcoming trials for yous do the business <br /><br />- Maddies family: Hope Maddie gets good results from K next Monday, it really has transformed my life. Woodyhttps://www.blogger.com/profile/10941380097324635644noreply@blogger.comtag:blogger.com,1999:blog-1638179655469527844.post-92003341422326505442013-03-20T12:22:52.882-07:002013-03-20T12:22:52.882-07:00Woody,
Thanks for the update - it's all hugely...Woody,<br />Thanks for the update - it's all hugely encouraging to read. Maddie started on K in late Feb and is off for her first follow-up clinic next Monday, so our fingers are crossed for a big drop in sweat chloride (we are not expecting much change on spirometry).<br /><br />ps: keep up the good work on the CF forum about untrialled stuff.Maddie's Familynoreply@blogger.comtag:blogger.com,1999:blog-1638179655469527844.post-10566205155243357242013-03-19T14:23:38.193-07:002013-03-19T14:23:38.193-07:00Wow, that's fantastic and gives me loads of ho...Wow, that's fantastic and gives me loads of hope for the future!<br /><br />from a fellow Wythenshaweian!Little Harriethttps://www.blogger.com/profile/09377386715895822823noreply@blogger.comtag:blogger.com,1999:blog-1638179655469527844.post-49067524013478504982013-03-18T02:35:25.070-07:002013-03-18T02:35:25.070-07:00gosh that's amazing! Its seriously like a mira...gosh that's amazing! Its seriously like a miracle drug!Mehttps://www.blogger.com/profile/01980696682184070600noreply@blogger.com