Wednesday, July 28, 2010

Who ate all the pies?

I had my best hospital visit for a while back on Wednesday. Weight is back up to 10 stone 5; so I've put on half a stone since losing load after Christmas. Hurrah for Scandishakes! With the help of a Scandishake with breakfast nearly every morning, my weight has slowly crept back up again. My blows have stayed pretty steady at 2.7/3.9, my flight SATS have somehow got better since my last test a few years ago. The only thing to watch is the aspergillus levels which have risen a bit, and the glucose tolerance test, which shows my blood sugar does dip quite low 2 hours after the test.

A bunch of us went camping last week near Ullswater. The kids coped really well, it helped that they had loads of kids their age to play with. The weather wasn't great but it didn't rain and you can't ask for more than that. The cheap supermarket BBQ meat was pretty gross though, it was so bad none of us could eat it and the dogs that went past in the morning steered well clear as well ;-)

Friday, July 23, 2010

Proud Brother

typical, my sister inherits the long legs and I get the short and stumpy ones ;-)

Last weekend my sister was finally given her BSc Hons in Geography. Me and my mum went to the graduation ceremony with her boyfriend, then we all went out for a drink and some noodles to celebrate! Happy times, even if the ceremony was a bit boring (A massive procession of students being clapped, and J was right at the end...)

Wednesday, July 21, 2010

Current Eating/Treatment Regime

PWCF need to eat a lot to stay at their current weight. I think I'm lucky in that I don't have to eat as much as some, but still, in the last 6 months, I've somehow lost about half a stone without my appetite dropping or without eating any less so I have had to add a scandishake to the mix. I had a meeting with the dietician the other week at my annual and she suggested adding another scandishake at the end of tbe day.

Food / Med Diary (Week)

  • 6.30AM Get up
  • 6.45 Azithromycin and Flucloxacillin
  • 6.50 do Dnase on INeb
  • 7.00 Breakfast Scandishake with full-fat milk and cereal
  • 7.00 Vitamins, uniphyllin, calcium chew
  • 7.45 Drive to work, drop off kid(s), do some physio in car, spit into empty creon pot in car. (Timing is everything in this ;-))
  • 8.30 Arrive at work.
  • 8.30 Do Colymycin Neb in car at work
  • 10.30 Apple, banana
  • 11.00 2 Pork Pies
  • 1.00PM Lunch (Sandwich, Mayonaise, Meat Filling, Crisps, Tango or Tea)
  • 3.00 Chocolate bar (note: Boost is 300 calories!)
  • 5PM Leave work, pick up kids.
  • 6PM Dinner with kids (have to play it safe so kids have something to eat so we normally have chicken, brocolli, peas and mash, or bangers brocolli and mash, or Lloyd Grossman's Tomatoe Chicken Balti and Rice, or Spagetti Bolognaise or Pasta and Roast vegetables which the kids will actually eat.
  • 8PM Kids in bed. And relax. Either go for a run/bike ride or get the wine out, depending on how healthy/lazy I'm feeling.
  • 9-10PM Colymycin Neb

What an exciting life I lead. Need to try and squeeze in another Scandishake at the end of the day but at the moment it's a struggle, my tum needs a rest ;-)

Friday, July 9, 2010

Tumbles day

A tumbles day is a day to forget, and I've just had one. Yesterday I decided to work from home to make it easier to drop off Abby today and sods law; one of the big bosses decided to pay a visit to the office to see me, so I missed him. He also dropped off a request list that I should have had in May for a dealine at the end of the THIS month. Grump, grump, grump! ;-) And to top it off Abby threw a mega strop at the cricket club on the way back from the school summer fair because we wouldn't buy her any more sweets. Does anyone have a manual on how to be a firm parent? Because I seem to be made of mush when it comes to discipline.....anyway, I've got the wine out and I'm sulking. With three hours of Glastonbury I taped from last week.