Monday, March 28, 2011

Grizedale Lakes Bike Ride in Pictures

So the score for the weekend is Woody 1, CF 0. Although CF will come back you can be sure of that. Unfortunately, there's only one good picture from the Grizedale trail we did on the weekend. The other one is of V's helmet after he took a tumble; at least we know why it's important to wear helmets. Also, looking at this main picture I have decided I really should not stand next to MB in any more pictures, he's about 6'2" and he makes me look tiny. ;-)

I cannot tell you how hard this was at times, especially towards the end of the 8 hour ride when I felt semi-conscious going down some of the hills with my shoulders aching. But it was worth it; my lungs felt really clean at the end of the ride (was coughing a lot at the start and brought up some nasty looking plugs halfway round) and at the end of the day it's good fun (most of the time!). Whenever I was struggling to peddle up a hill I tried to focus on some of the CF peeps out there that have gone through/are going through incredible fights on a daily basis with CF (Tori, Poozie, Angel, Kirstie and all) and I try and gain strength from knowing whatever I go through is nothing in comparison.

Not so sure about the pubbing/clubbing in the evening, Bowness is a bit towny, and I really couldn't be bothered...I think drinking is overrated. There was a girl/girl fight on the dance floor in one of the clubs (bouncers thankfully intervened before it got too nasty) that really freaked me out. I hate what alcohol does to some people...

Thursday, March 24, 2011

Patronised on Ebay!

Kids these days; should I be annoyed? I wouldn't mind but the thing I was selling from my dad's house only sold for 99p, the damn fiddly postage and packing to France cost £17...

Edit: I've decided to forgive him as he has offered to pay some money for red nose day because he feels bad for getting such a cheap bargain. ;-)

"Thanks for the "wrong" barcode 8-D LOOOOOOOOOOOOL
==)> not "LY215357443.......68"
but "LY215357443.......GB

Hopefully i'm used to buy in UK ... so i'm used to translate your two last numbers into corresponding letters ;o))
==)> i think you should go to bed by now ;)"

Tuesday, March 22, 2011

End of ABs and the real work begins

Sorry for this geek post ;-) Last week it was the end of oral antibiotics and my lungs felt better without feeling *deep down clean* the way they do with IVs, however if you compare these two races - then my all round fitness does seem to have improved since the start of the minging infection (March 8th was in the middle of the infection and I was coughing all through the ride, March 22nd is on a sunny day today 1 week after the ABs) so hopefully I'm on the road to recovery...

Back to Activities

Bramhall Loop

Road Cycling

Tue, Mar 22, 2011 12:09 PM

Bramhall Loop

Road Cycling

Tue, Mar 8, 2011 12:38 PM


Distance 7.52 km 7.21 km
Time 00:29:28 00:33:02
Avg Pace 03:55 min/km 04:34 min/km
Calories 225 C 310 C
Avg HR (bpm) 123 bpm 131 bpm
Max HR (bpm) 148 bpm 151 bpm
Avg HR (% of Max) 66 % of Max 71 % of Max

Last week I visited the hospital outpatients and was seen by Proff Web, it was nice to have a catch up with the grand old duke of CF ;-) because I rarely see him in clinic these days (he's semi-retired I think, but certainly knows his stuff). In the end we didn't talk about the usual CF things like I would at a normal oupatients clinic, we just talked about the good old days when I first moved to the Adult CF Hospital and the progress of the VX-770 trial. I was a bit depressed about the potential cost of the drug, and whether NICE would be able to fund it, but I talked it out on the forum and now I feel a bit better about it. FEV was 2.65 and 3.2 which is a bit down; I'm hoping it's going to pick up as I pick up the exercise...

Wednesday, March 16, 2011

Ebay a go go!

I've started to put some of my dad's stuff on Ebay, I don't think we'll get much for it all but it's nice to know somebody will be able to use some of the stuff; especially his electric riser/recliner chair which I really hope somebody disabled will be able to use. Seeing some of his old stuff doesn't half bring back memories; he used to play D&D (dungeons and dragons) in the sports and social club at Phillips Hazel Grove. It's got something of a geeky reputation now but back in the day (before computers) it was popular in a cult way, there was at least as many women as men playing it in the group, at it's peak there were about 16 in the D&D group (AORTA: Association of reasonably trustworthy adventurers ;-)). We played it as a family too; my dad had read The Hobbit and The Lord of the Rings to my sister and myself when we were children and it really fired our imaginations, with D&D my dad as Dungeon Master would create a world similar to that in Lord of the Rings and we as characters in that world would have to negotiate our way through dangerous adventures...memories...

I've also got my mates to help out demolishing a rotten wooden outhouse and tidying up the garden, unfortunately there was so much thick ivy branches growing in the garden that taking down the ivy has demolished the fence! So now we need a new fence. We'll get there, hopefully by the end of the month because I could really do with putting the (emptied) house on the market so I can relax and forget about it. I'm not expecting it to sell straight away but at least if it's on the market there's a chance!

My sister has been working on the interior, it's not gone smoothly! The idiot she got in to do the decorating ending up giving the curtains away to a charity, so now everyone can look into the house and see it's empty. He also threw out the recycling schedule so now I don't know when to put the bins out! And he didn't actually finish the decorating job!!! Some people...

Friday, March 11, 2011

Wednesday, March 9, 2011

Dad's House

Maybe his back garden has been a bit neglected over the last few years. I think I'm going to have to have a go at doing it up before we can sell the house...there is also all his stuff as well, just boxes and boxes of stuff that I don't know what to do with. Books, photos, letters, computers, electronics, crockery. Normally, I'd put it in my loft and think about what to do with it later, but I don't have a loft, we got it converted so Oscar could have a bedroom! Help...

Tuesday, March 8, 2011

Rough Week

Well, after the good news of VX-770 I was brought crashing straight back down to earth with a virus that cut out the middle man (nose and throat) and went straight onto my chest. So for the last week boat loads of sputum has been bubbling out of my lungs at night like mount Vesuvius. I rang up the Hospital and got them to fax an antibiotic order through to my doctors with the minimum of fuss. They're very good. I'm on Rifampicin and Ciprofloxacin, so I'll need to watch the mood swings and nausea...

On Sunday I went for a bike ride to try and clear some of the gunk. It wasn't pretty ;-) My mate was going to come with me but he had to cancel at the last minute. Just as well really, he would have needed counseling if he'd seen what came out of my mouth ;-). I felt really ill during but it was worth it afterwards because I did feel a lot clearer. My heart felt a bit fluttery for a few hours afterwards though, maybe it was a side effect of the antibiotics...